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Nos existences handies” est un recueil de textes de Zig Blanquer. Ces essais puissamment politiques et enthousiasmants abordent le validisme, l’autonomie des handis, la sexualité, critiquent la notion de courage et de charité… Ils ont été écrits sur une vingtaine d’années, parus dans des revues et médias en ligne et hors ligne.
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Musiques sourdes? Face à cette expression, plusieurs se représentent les efforts pour donner aux personnes sourdes un « accès » à la musique, considérée ici dans sa forme entendante normative (p. ex. une piste sonore musicale). Traduction de chansons vocales en langues des signes diverses, transformation de pistes sonores en expérience vibratoire, rythmes musicaux traduits par des haut-parleurs visuels, etc. Les initiatives d’accessibilité sont multiples, mais la plupart du temps unidirectionnelles : elles visent à rendre la musique entendante accessible aux personnes sourdes, réputées vivre dans un « monde de silence ». Nos mains qui vibrent vise à déconstruire le concept d’accessibilité : et si c’étaient les personnes entendantes qui avaient accès aux musiques signées?
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Les mots de trop est un outil de lutte et de sensibilisation à destination de tous·tes les étudiant·es des milieux de la culture.
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This research examines the discourses that shape disabled women’s sexual subjectivity. I wanted to see how disabled women’s understanding of themselves as sexual is socially influenced. I held a focus group and individually interviewed five self-identified physically disabled women about their sexual lives. They shared detailed stories of personal experiences and societal influences. The main social influences that were present in the women’s stories were ableism, sexism, and resistance; the focus of this article is resistance. Resistance discourses challenge mainstream notions of disability and sexuality and combat the oppression that ableism and sexism can create. It is important work to highlight these resistance narratives; they are often overlooked in society. Diverse social understandings of disability and sexuality are needed, and it is important that they come from disabled people. This research seeks to make space for disabled perspectives in the interest of sexual inclusivity and sexual citizenship for disabled women.
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In this paper, we propose a conceptual framework for understanding the impact of the policy responses to COVID-19 on disabled people. These responses have overwhelmingly focused on individual vulnerability, which has been used as a justification for removing or restricting rights. This suggests the need to shift the attention towards the social determinants of disabled people's vulnerability. We do this by bringing literature on social vulnerability in disaster risk management or 'disaster studies' in contact with key concepts in disability studies such as the social model of disability, independent living, intersectionality, and biopower. Empirically, we draw on the findings of the global COVID-19 Disability Rights Monitor (www.covid-drm.org), as well as on reports from academic journals, civil society publications, and internet blogs. We put the proposed conceptual framework to work by developing a critical analysis of COVID-19 policies in three interrelated areas-institutional treatment and confinement of disabled people, intersectional harms, and access to health care. Our conclusion links this analysis with strategies to address disabled people's social vulnerability in post-pandemic reconstruction efforts. We make a case for policies that address the social, economic, and environmental conditions that disproportionately expose disabled people to natural disasters and hazards.
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This handbook provides a much-needed holistic overview of disability and sexuality research andscholarship. With authors from a wide range of disciplines and representing a diversity of nationalities, it provides a multi-perspectival view that fully captures the diversity of issues and outlooks. Organised into six parts, the contributors explore long-standing issues such as the psychological, interpersonal, social, political and cultural barriers to sexual access that idsabled people face and their struggle for sexual rights and participation. The volume also engages issues that have been on the periphery of the discourse, such as sexual accomodations and support aimed at facilitating disabled people's sexual well-being; the socio-sexual tensions confronting disabled people with intersecting stigmatised identities such as LGBTBI or asexual; and the sexual concerns of disabled people in the Global South. It interrogates disability and sexuality from diverse perspectives, from more traditional psychological and sociological models, to various subversive and post-theoretical perspectives and queer theory. This handbook examines the cutting-edge, and sometimes ethically contentious, concerns that have been repressed in the field. With current, international and comprehensive content, this book is essential reading for students, academics and researchers in the areas of disability, gender and sexuality, as well as applied disciplines such as healthcare pratictionners, counsellors, psychology trainees and social workers.
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The literature on epistemic injustice currently displays a logocentric or propositional bias that excludes people with intellectual disabilities from the scope of epistemic agency and the demands of epistemic justice. This paper develops an account of epistemic agency and injustice that is inclusive of both people with and people without intellectual disabilities. I begin by specifying the hitherto undertheorized notion of epistemic agency. I develop a broader, pluralist account of epistemic agency, which relies on a conception of knowledge that accounts not only for propositional knowing, but also for other types of knowing that have been largely neglected in debates on epistemic injustice and agency. Based on this pluralist account of epistemic agency, I then show that people with intellectual disabilities qualify as epistemic agents and therefore as subjects of epistemic justice. Finally, I argue that this pluralist account of epistemic agency pushes us to revisit the current conception of epistemic injustice and to expand its taxonomy in two important ways.
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"This is one of the first books to offer a comprehensive philosophical treatment of microaggressions. Its aims are to provide an intersectional analysis of microaggressions that cuts across multiple groups and dimensions of oppression and marginalization, and to engage a variety of perspectives that have been sidelined within the discipline of philosophy. The volume gathers a diverse group of contributors: philosophers of color, philosophers with disabilities, philosophers of various nationalities and ethnicities, and philosophers of several genders and gender identities. Their unique frames of analysis articulate both how the concept of microaggressions can be used to clarify and sharpen our understanding of subtler aspects of oppression and how analysis, expansion, and reconceiving the notion of a microaggression can deepen and extend its explanatory power. The essays in the volume are divided into four thematic parts. The essays in Part I seek to defend microaggressions from common critiques and to explain their impact beyond the context of college students. In Part II the contributors set forth a framework for legitimizing microaggressions research that takes into account issues of measurement, scale, and replication. Part III explores the harms of microaggressions. The chapters show how small slights can accumulate to produce significant harm at the macro level, demonstrate how microaggressions contribute to epistemic harm, and establish novel understandings of racial and accent-triggered microaggressions. Finally, Part IV addresses issues of disability and ableism within the context of microaggressions. It includes commentary on transgender athletes, disciplinary techniques for bodily nonconformity, ableist exceptionalism, and deafness. Microaggressions and Philosophy features cutting-edge research on an important topic that will appeal to a wide range of students and scholars across disciplines. It includes perspectives from philosophy of psychology, empirically informed philosophy, feminist philosophy, critical race theory, disability theory, philosophy of language, philosophy of science, and social and political philosophy"-- Provided by publisher.
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A Black feminist disability framework allows for methodological considerations of the intersectional nature of oppression. Our work in this article is twofold: to acknowledge the need to consider disability in Black Studies and race in Disability Studies, and to forward an intersectional framework that considers race, gender, and disability to address the gaps in both Black Studies and Disability Studies. By employing a Black feminist disability framework, scholars of African American and Black Studies, Women’s, Gender, and Sexuality Studies, and Disability Studies have a flexible and useful methodology through which to consider the historical, social, cultural, political, and economic reverberations of disability.
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This article highlights the importance of recognizing both the ontology of impairment as it relates to the creation of the disabled identity as well as why articulations of the disabled identity being ‘crip’ obfuscate potential politics. Examining how the disabled identity has been cast as a coherent social and political category, rather than the messy and complicated identity it truly is, I argue the adoption of a post-structuralist orientation by activists and advocates is bad for disability politics. Providing two examples, the first focusing on a publicized rape case of a person with an intellectual disability and the second on the importance of disability rights claims based on visibility of impairment, I show how articulations like those made in crip theory can have serious, negative implications for the lived experience of people with disabilities. I conclude with a call for disability studies scholars to engage disability politics in their work.
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La Classification internationale : Modèle de Développement humain – Processus de production du handicap (2018) comprend le schéma conceptuel du MDH-PPH, les définitions des domaines conceptuels « habitudes de vie », « facteurs environnementaux » et « facteurs personnels » et leurs différentes nomenclatures. Ce document de référence se révèle utile pour classer l’information disponible de manière cohérente en respectant le principe d’exclusion mutuelle des concepts, central à l’approche du MDH-PPH.
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Interest in the sexuality of persons with disabilities is growing and research improves our understanding of issues in this regard. This leads us to a reflection on the definition of sexual rights in international law, and the way in which sexual rights of persons with disabilities are understood. Examining existing norms leads to the conclusion that despite developments in this area, sexual rights remain largely limited to the field of health, and this has not changed with the adoption of the Convention on the Rights of Persons with Disabilities (CRPD). The limited claims related to these rights during the negotiations of the CRPD is surprising given the significant participation of persons with disabilities. Yet, despite the lack of clarification in relation to the sexual rights of persons with disabilities in the convention, the practice of interpretation of law remains a way to develop international law in this field, particularly through the evolving concept of non-discrimination.
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This article analyses the phenomenon of epistemic injustice within contemporary healthcare. We begin by detailing the persistent complaints patients make about their testimonial frustration and hermeneutical marginalization, and the negative impact this has on their care. We offer an epistemic analysis of this problem using Miranda Fricker’s account of epistemic injustice. We detail two types of epistemic injustice, testimonial and hermeneutical, and identify the negative stereotypes and structural features of modern healthcare practices that generate them. We claim that these stereotypes and structural features render ill persons especially vulnerable to these two types of epistemic injustice. We end by proposing five avenues for further work on epistemic injustice in healthcare.
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In the era of information and communication, issues of misinformation and miscommunication are more pressing than ever. Epistemic injustice--one of the most important and ground-breaking subjects to have emerged in philosophy in recent years--refers to those forms of unfair treatment that relate to issues of knowledge, understanding, and participation in communicative practices. The Routledge Handbook of Epistemic Injustice is an outstanding reference source to the key topics, problems, and debates in this exciting subject. The first collection of its kind, it comprises over thirty chapters by a team of international contributors, divided into five parts: Core Concepts; Liberatory Epistemologies and Axes of Oppression; Schools of Thought and Subfields within Epistemology; Socio-political, Ethical, and Psychological Dimensions of Knowing; Case Studies of Epistemic Injustice. As well as fundamental topics such as testimonial and hermeneutic injustice and epistemic trust the Handbook includes chapters on important issues such as social and virtue epistemology, objectivity and objectification, implicit bias, and gender and race. Also included are chapters on areas in applied ethics and philosophy, such as law, education, and healthcare. The Routledge Handbook of Epistemic Injustice is essential reading for students and researchers in ethics, epistemology, political philosophy, feminist theory, and philosophy of race. It will also be very useful for those in related fields, such as cultural studies, sociology, education, and law.
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En contexte de handicap, la question de l’accès est constituée généralement de l’éventail des aménagements individuels et collectifs nécessaires afin de faciliter l’occupation d’espaces publics. A contrario, peu de choses sont dites à propos des aménagements possibles et potentiels requis afin de sécuriser l’espace privé des personnes identifiées comme ayant un handicap intellectuel. Ce sont pourtant ces lieux intimes, au sein desquels se développent et se déploient l’identité et l’expression affectives, qui sont susceptibles de contribuer à une reconnaissance plus soutenue de l’identité affective et de la citoyenneté sexuelle de ces personnes. Inspirée par les théories d’Erving Goffman et de Michel Foucault, une analyse phénoménologique interprétative (API) fut réalisée auprès des personnes ayant un handicap intellectuel et de leurs proches aidants afin d’explorer cette situation. Nos constats préliminaires suggèrent l’existence d’un processus de négociation complexe des acteurs, des lieux et des moments nécessaires afin de favoriser le développement de la vie affective et sexuelle. De ce fait, trois modes d’existence semblent cohabiter au sein d’une matrice complexe : la dépossession, l’habitation et l’occupation des espaces de socialisation et d’expression affective. Il est proposé d’aborder cette problématique en tant que dynamique géopolitique intégrant les processus d’exclusion des pratiques sexuelles des espaces privés, leur projection dans des espaces publics et, finalement, la juxtaposition de ces deux sphères, publique et privée dans des espaces mixtes. Nous discuterons enfin des implications de cette réflexion sur la « question de l’accès » et sur les politiques publiques visant à diminuer la discrimination systémique ciblant les personnes identifiées comme ayant un handicap intellectuel.
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Interview of Robert McRuer on crip theory.
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This article provides an overview on reproductive and sexual health of people with physical disabilities in developed and underdeveloped countries from 1995 to 2011. Based on the metasynthesis approach, the authors reviewed 15 qualitative studies. These studies were searched using Medline, CINAHL, CINAHL (health), ProQuest Central, Google Scholar, Cochrane, Embase, Informit Health, Sciences Direct, Pubmed, Pubmed Health, AAHD (abstracts), ProQuest Journal (sexuality and disability) and were also manually searched. All studies were judged on their qualities using the Critical Appraisal Skills Programme. Reproductive health, sexual attractiveness and experiences, reproductive and sexual health knowledge, and dealing with reproductive and sexual health issues were four main themes that emerged from these studies. This paper proposes a new model to explain the factors that impacted the reproductive and sexual life of people with physical disabilities: internal and external factors. Implications for health and social care are discussed in light of the findings.
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Finaliste du Prix littéraire Lambda et du Prix Judy Grahn pour la non-fiction lesbienne En 1996, la poète Leah Lakshmi Piepzna-Samarasinha, portant seulement deux sacs à dos, a pris un bus Greyhound en Amérique et s'est enfuie au Canada. Iel s'est retrouvé.e à Toronto, où iel a été accueilli.e par une communauté de punks queer de couleur offrant des promesses d'amour et de révolution, mais iel est resté.e hanté.e par les raisons pour lesquelles iel a quitté la maison en premier lieu. Ce mémoire passionné et captivant est un mélange de rêves et de cauchemars, de files d'attente devant les tribunaux de l'immigration et de soirées dansantes queer sud-asiatiques ; Il s'agit d'une feuille de route intensément personnelle et d'un récit tragi-comique intersectionnel qui révèle comment une femme queer handicapée de couleur et survivante d'abus navigue sur la rivière sale d'un passé pas si lointain et, comme le suggère le sous-titre, « rêve de rentrer chez elle ». "
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In this ground-breaking new work, Dan Goodley makes the case for a novel, distinct, intellectual, and political project – dis/ability studies – an orientation that might encourage us to think again about the phenomena of disability and ability. Drawing on a range of interdisciplinary areas, including sociology, psychology, education, policy and cultural studies, this much needed text takes the most topical and important issues in critical disability theory, and pushes them into new theoretical territory. Goodley argues that we are entering a time of dis/ability studies, when both categories of disability and ability require expanding upon as a response to the global politics of neoliberal capitalism. Divided into two parts, the first section traces the dual processes of ableism and disablism, suggesting that one cannot exist without the other, and makes the case for a research-driven and intersectional analysis of dis/ability. The second section applies this new analytical framework to a range of critical topics, including: The biopolitics of dis/ability and debility Inclusive education Psychopathology Markets, communities and civil society. Dis/ability Studies provides much needed depth, texture and analysis in this emerging discipline. This accessible text will appeal to students and researchers of disability across a range of disciplines, as well as disability activists, policymakers, and practitioners working directly with disabled people.
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