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Musiques sourdes? Face à cette expression, plusieurs se représentent les efforts pour donner aux personnes sourdes un « accès » à la musique, considérée ici dans sa forme entendante normative (p. ex. une piste sonore musicale). Traduction de chansons vocales en langues des signes diverses, transformation de pistes sonores en expérience vibratoire, rythmes musicaux traduits par des haut-parleurs visuels, etc. Les initiatives d’accessibilité sont multiples, mais la plupart du temps unidirectionnelles : elles visent à rendre la musique entendante accessible aux personnes sourdes, réputées vivre dans un « monde de silence ». Nos mains qui vibrent vise à déconstruire le concept d’accessibilité : et si c’étaient les personnes entendantes qui avaient accès aux musiques signées?
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This research examines the discourses that shape disabled women’s sexual subjectivity. I wanted to see how disabled women’s understanding of themselves as sexual is socially influenced. I held a focus group and individually interviewed five self-identified physically disabled women about their sexual lives. They shared detailed stories of personal experiences and societal influences. The main social influences that were present in the women’s stories were ableism, sexism, and resistance; the focus of this article is resistance. Resistance discourses challenge mainstream notions of disability and sexuality and combat the oppression that ableism and sexism can create. It is important work to highlight these resistance narratives; they are often overlooked in society. Diverse social understandings of disability and sexuality are needed, and it is important that they come from disabled people. This research seeks to make space for disabled perspectives in the interest of sexual inclusivity and sexual citizenship for disabled women.
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In this paper, we propose a conceptual framework for understanding the impact of the policy responses to COVID-19 on disabled people. These responses have overwhelmingly focused on individual vulnerability, which has been used as a justification for removing or restricting rights. This suggests the need to shift the attention towards the social determinants of disabled people's vulnerability. We do this by bringing literature on social vulnerability in disaster risk management or 'disaster studies' in contact with key concepts in disability studies such as the social model of disability, independent living, intersectionality, and biopower. Empirically, we draw on the findings of the global COVID-19 Disability Rights Monitor (www.covid-drm.org), as well as on reports from academic journals, civil society publications, and internet blogs. We put the proposed conceptual framework to work by developing a critical analysis of COVID-19 policies in three interrelated areas-institutional treatment and confinement of disabled people, intersectional harms, and access to health care. Our conclusion links this analysis with strategies to address disabled people's social vulnerability in post-pandemic reconstruction efforts. We make a case for policies that address the social, economic, and environmental conditions that disproportionately expose disabled people to natural disasters and hazards.
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The literature on epistemic injustice currently displays a logocentric or propositional bias that excludes people with intellectual disabilities from the scope of epistemic agency and the demands of epistemic justice. This paper develops an account of epistemic agency and injustice that is inclusive of both people with and people without intellectual disabilities. I begin by specifying the hitherto undertheorized notion of epistemic agency. I develop a broader, pluralist account of epistemic agency, which relies on a conception of knowledge that accounts not only for propositional knowing, but also for other types of knowing that have been largely neglected in debates on epistemic injustice and agency. Based on this pluralist account of epistemic agency, I then show that people with intellectual disabilities qualify as epistemic agents and therefore as subjects of epistemic justice. Finally, I argue that this pluralist account of epistemic agency pushes us to revisit the current conception of epistemic injustice and to expand its taxonomy in two important ways.
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A Black feminist disability framework allows for methodological considerations of the intersectional nature of oppression. Our work in this article is twofold: to acknowledge the need to consider disability in Black Studies and race in Disability Studies, and to forward an intersectional framework that considers race, gender, and disability to address the gaps in both Black Studies and Disability Studies. By employing a Black feminist disability framework, scholars of African American and Black Studies, Women’s, Gender, and Sexuality Studies, and Disability Studies have a flexible and useful methodology through which to consider the historical, social, cultural, political, and economic reverberations of disability.
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This article highlights the importance of recognizing both the ontology of impairment as it relates to the creation of the disabled identity as well as why articulations of the disabled identity being ‘crip’ obfuscate potential politics. Examining how the disabled identity has been cast as a coherent social and political category, rather than the messy and complicated identity it truly is, I argue the adoption of a post-structuralist orientation by activists and advocates is bad for disability politics. Providing two examples, the first focusing on a publicized rape case of a person with an intellectual disability and the second on the importance of disability rights claims based on visibility of impairment, I show how articulations like those made in crip theory can have serious, negative implications for the lived experience of people with disabilities. I conclude with a call for disability studies scholars to engage disability politics in their work.
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Interest in the sexuality of persons with disabilities is growing and research improves our understanding of issues in this regard. This leads us to a reflection on the definition of sexual rights in international law, and the way in which sexual rights of persons with disabilities are understood. Examining existing norms leads to the conclusion that despite developments in this area, sexual rights remain largely limited to the field of health, and this has not changed with the adoption of the Convention on the Rights of Persons with Disabilities (CRPD). The limited claims related to these rights during the negotiations of the CRPD is surprising given the significant participation of persons with disabilities. Yet, despite the lack of clarification in relation to the sexual rights of persons with disabilities in the convention, the practice of interpretation of law remains a way to develop international law in this field, particularly through the evolving concept of non-discrimination.
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This article analyses the phenomenon of epistemic injustice within contemporary healthcare. We begin by detailing the persistent complaints patients make about their testimonial frustration and hermeneutical marginalization, and the negative impact this has on their care. We offer an epistemic analysis of this problem using Miranda Fricker’s account of epistemic injustice. We detail two types of epistemic injustice, testimonial and hermeneutical, and identify the negative stereotypes and structural features of modern healthcare practices that generate them. We claim that these stereotypes and structural features render ill persons especially vulnerable to these two types of epistemic injustice. We end by proposing five avenues for further work on epistemic injustice in healthcare.
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En contexte de handicap, la question de l’accès est constituée généralement de l’éventail des aménagements individuels et collectifs nécessaires afin de faciliter l’occupation d’espaces publics. A contrario, peu de choses sont dites à propos des aménagements possibles et potentiels requis afin de sécuriser l’espace privé des personnes identifiées comme ayant un handicap intellectuel. Ce sont pourtant ces lieux intimes, au sein desquels se développent et se déploient l’identité et l’expression affectives, qui sont susceptibles de contribuer à une reconnaissance plus soutenue de l’identité affective et de la citoyenneté sexuelle de ces personnes. Inspirée par les théories d’Erving Goffman et de Michel Foucault, une analyse phénoménologique interprétative (API) fut réalisée auprès des personnes ayant un handicap intellectuel et de leurs proches aidants afin d’explorer cette situation. Nos constats préliminaires suggèrent l’existence d’un processus de négociation complexe des acteurs, des lieux et des moments nécessaires afin de favoriser le développement de la vie affective et sexuelle. De ce fait, trois modes d’existence semblent cohabiter au sein d’une matrice complexe : la dépossession, l’habitation et l’occupation des espaces de socialisation et d’expression affective. Il est proposé d’aborder cette problématique en tant que dynamique géopolitique intégrant les processus d’exclusion des pratiques sexuelles des espaces privés, leur projection dans des espaces publics et, finalement, la juxtaposition de ces deux sphères, publique et privée dans des espaces mixtes. Nous discuterons enfin des implications de cette réflexion sur la « question de l’accès » et sur les politiques publiques visant à diminuer la discrimination systémique ciblant les personnes identifiées comme ayant un handicap intellectuel.
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This article provides an overview on reproductive and sexual health of people with physical disabilities in developed and underdeveloped countries from 1995 to 2011. Based on the metasynthesis approach, the authors reviewed 15 qualitative studies. These studies were searched using Medline, CINAHL, CINAHL (health), ProQuest Central, Google Scholar, Cochrane, Embase, Informit Health, Sciences Direct, Pubmed, Pubmed Health, AAHD (abstracts), ProQuest Journal (sexuality and disability) and were also manually searched. All studies were judged on their qualities using the Critical Appraisal Skills Programme. Reproductive health, sexual attractiveness and experiences, reproductive and sexual health knowledge, and dealing with reproductive and sexual health issues were four main themes that emerged from these studies. This paper proposes a new model to explain the factors that impacted the reproductive and sexual life of people with physical disabilities: internal and external factors. Implications for health and social care are discussed in light of the findings.
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Review of Feminist, Queer, Crip by Alison Kafer.
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La reconnaissance du droit des personnes ayant des incapacités intellectuelles à une éducation à la sexualité a généré la conception et l’implantation de programmes éducatifs. À quelles valeurs et croyances les professionnels se réfèrent-ils pour organiser l’éducation à la sexualité? Une analyse critique des approches dominantes actuelles est proposée pour contribuer à leur progrès et à leur transformation. Pour dépasser les limites des approches paternalistes et objectivistes, il est suggéré d’adopter un nouveau paradigme fondé sur des perspectives participatives et subjectivistes. Le renouvellement de l’éducation à la sexualité pourrait procéder par énovation en enrichissant et en élargissant les pratiques existantes.
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Les femmes handicapées, leurs réalités et leurs combats sont encore largement absents du courant de pensée majoritaire (mainstream) en études féministes qui, malgré un virage récent vers les analyses intersectionnelles, demeurent peu au fait des modalités d'analyse du handicap et des oppressions fondées sur les (in)capacités. Cet article veut permettre à un lectorat francophone de se familiariser avec les principales bases conceptuelles utilisées pour théoriser le handicap et les (in)capacités développées dans le domaine des études critiques du handicap, et en particulier par les auteures féministes travaillant dans ce champ. Il vise également à contribuer aux connaissances féministes des enjeux de transformation sociopolitique qui sont centraux pour les femmes handicapées, tels que ceux-ci sont révélés par les luttes de l'organisation féministe Action des femmes handicapées (Montréal). En conclusion, l'auteure explique la raison pour laquelle le handicap doit être considéré comme un enjeu féministe
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This article elaborates an intimate justice framework to help guide research on sexual satisfaction. Using a critical historiography approach, I examine the etiology and development of the psychological construct of “satisfaction” over the last century and argue that social and political antecedents to satisfaction ratings are an essential and under-theorized aspect of research in this field. By examining what are considered to be the most influential definitions in life satisfaction research, I identify conceptual gaps, oversights, and disagreements that characterize this body of work, and specifically its theoretical treatment of inequity. Moving to the intimate domain, I argue that the field of sexual satisfaction must include theories and methods that systematically consider the role of social and sexual stigmas as antecedents to sexual satisfaction ratings. In the conclusion, building from existing social justice theories, I propose an intimate justice framework as a means to guide research that can highlight issues of entitlement and deservingness in sexual satisfaction research. This is particularly important as sexual satisfaction is increasingly used as an indicator of individual and relational well-being; however, this construct is presently limited and inadequately measured for women and men who experience limited sexual rights in the socio-political domain because of their gender and/or sexual minority status.
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Consideration of sexual pleasure in the lives of people with disabilities plays little part in lay consciousness, and practically none in social policy. This article investigates such repression by engaging with a cultural imaginary that fears nonnormative sexuality as being a potential point of societal breakdown. Recent work in disability studies gives a very different understanding of the sexuate body that opens up the parameters of sexuality for everyone. This work challenges current social policy’s supposedly rational utilitarian basis and the principle of equality that together ground a sociopolitical economy of disability predicated on rehabilitation or compensation. Nonetheless, the call for sexual citizenship for people with disabi lities is fraught with difficulties, not least regarding the potential extension of govern mentality. An effective approach not only will take into account the sociopolitical aspects of this issue but also will respond to both the full embodiment of disability and its significance in mainstream culture.
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Le champ du handicap a subi de profondes transformations au cours des quatre dernières décennies dans la majorité des sociétés postindustrielles. Ce phénomène, qui influence les approches théoriques et la recherche à l’intérieur des sciences sociales, a fait surgir un nouveau paradigme émancipatoire basé sur une remise en cause des rapports entre le chercheur et le « sujet d’étude ». Dans cet article, nous explorons le développement de ce paradigme en nous appuyant sur l’expérience britannique, et nous discutons de son apport à la compréhension du handicap et des politiques sociales en abordant la question du rôle et de la position des acteurs au sein de la pratique de recherche
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As the interdisciplinary field of disability studies develops its own theoretical paradigms, it necessarily borrows from various sources. Such borrowing means that disability scholars have not had to reinvent the wheel but have been able to build on the conceptual foundations of identity-based theories that have grown out of other interdisciplinary fields, such as gender studies and critical race studies. But disability studies offers as much to its predecessors as it borrows from them. This essay explores the productive reciprocity between queer theory and disability studies, queer identity and crip identity, queer activism and crip activism.
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