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In this paper, we propose a conceptual framework for understanding the impact of the policy responses to COVID-19 on disabled people. These responses have overwhelmingly focused on individual vulnerability, which has been used as a justification for removing or restricting rights. This suggests the need to shift the attention towards the social determinants of disabled people's vulnerability. We do this by bringing literature on social vulnerability in disaster risk management or 'disaster studies' in contact with key concepts in disability studies such as the social model of disability, independent living, intersectionality, and biopower. Empirically, we draw on the findings of the global COVID-19 Disability Rights Monitor (www.covid-drm.org), as well as on reports from academic journals, civil society publications, and internet blogs. We put the proposed conceptual framework to work by developing a critical analysis of COVID-19 policies in three interrelated areas-institutional treatment and confinement of disabled people, intersectional harms, and access to health care. Our conclusion links this analysis with strategies to address disabled people's social vulnerability in post-pandemic reconstruction efforts. We make a case for policies that address the social, economic, and environmental conditions that disproportionately expose disabled people to natural disasters and hazards.

This handbook provides a much-needed holistic overview of disability and sexuality research andscholarship. With authors from a wide range of disciplines and representing a diversity of nationalities, it provides a multi-perspectival view that fully captures the diversity of issues and outlooks. Organised into six parts, the contributors explore long-standing issues such as the psychological, interpersonal, social, political and cultural barriers to sexual access that idsabled people face and their struggle for sexual rights and participation. The volume also engages issues that have been on the periphery of the discourse, such as sexual accomodations and support aimed at facilitating disabled people's sexual well-being; the socio-sexual tensions confronting disabled people with intersecting stigmatised identities such as LGBTBI or asexual; and the sexual concerns of disabled people in the Global South. It interrogates disability and sexuality from diverse perspectives, from more traditional psychological and sociological models, to various subversive and post-theoretical perspectives and queer theory. This handbook examines the cutting-edge, and sometimes ethically contentious, concerns that have been repressed in the field. With current, international and comprehensive content, this book is essential reading for students, academics and researchers in the areas of disability, gender and sexuality, as well as applied disciplines such as healthcare pratictionners, counsellors, psychology trainees and social workers.

A Black feminist disability framework allows for methodological considerations of the intersectional nature of oppression. Our work in this article is twofold: to acknowledge the need to consider disability in Black Studies and race in Disability Studies, and to forward an intersectional framework that considers race, gender, and disability to address the gaps in both Black Studies and Disability Studies. By employing a Black feminist disability framework, scholars of African American and Black Studies, Women’s, Gender, and Sexuality Studies, and Disability Studies have a flexible and useful methodology through which to consider the historical, social, cultural, political, and economic reverberations of disability.

This article highlights the importance of recognizing both the ontology of impairment as it relates to the creation of the disabled identity as well as why articulations of the disabled identity being ‘crip’ obfuscate potential politics. Examining how the disabled identity has been cast as a coherent social and political category, rather than the messy and complicated identity it truly is, I argue the adoption of a post-structuralist orientation by activists and advocates is bad for disability politics. Providing two examples, the first focusing on a publicized rape case of a person with an intellectual disability and the second on the importance of disability rights claims based on visibility of impairment, I show how articulations like those made in crip theory can have serious, negative implications for the lived experience of people with disabilities. I conclude with a call for disability studies scholars to engage disability politics in their work.

La Classification internationale : Modèle de Développement humain – Processus de production du handicap (2018) comprend le schéma conceptuel du MDH-PPH, les définitions des domaines conceptuels « habitudes de vie », « facteurs environnementaux » et « facteurs personnels » et leurs différentes nomenclatures. Ce document de référence se révèle utile pour classer l’information disponible de manière cohérente en respectant le principe d’exclusion mutuelle des concepts, central à l’approche du MDH-PPH.

Interest in the sexuality of persons with disabilities is growing and research improves our understanding of issues in this regard. This leads us to a reflection on the definition of sexual rights in international law, and the way in which sexual rights of persons with disabilities are understood. Examining existing norms leads to the conclusion that despite developments in this area, sexual rights remain largely limited to the field of health, and this has not changed with the adoption of the Convention on the Rights of Persons with Disabilities (CRPD). The limited claims related to these rights during the negotiations of the CRPD is surprising given the significant participation of persons with disabilities. Yet, despite the lack of clarification in relation to the sexual rights of persons with disabilities in the convention, the practice of interpretation of law remains a way to develop international law in this field, particularly through the evolving concept of non-discrimination.

This article analyses the phenomenon of epistemic injustice within contemporary healthcare. We begin by detailing the persistent complaints patients make about their testimonial frustration and hermeneutical marginalization, and the negative impact this has on their care. We offer an epistemic analysis of this problem using Miranda Fricker’s account of epistemic injustice. We detail two types of epistemic injustice, testimonial and hermeneutical, and identify the negative stereotypes and structural features of modern healthcare practices that generate them. We claim that these stereotypes and structural features render ill persons especially vulnerable to these two types of epistemic injustice. We end by proposing five avenues for further work on epistemic injustice in healthcare.

In the era of information and communication, issues of misinformation and miscommunication are more pressing than ever. Epistemic injustice--one of the most important and ground-breaking subjects to have emerged in philosophy in recent years--refers to those forms of unfair treatment that relate to issues of knowledge, understanding, and participation in communicative practices. The Routledge Handbook of Epistemic Injustice is an outstanding reference source to the key topics, problems, and debates in this exciting subject. The first collection of its kind, it comprises over thirty chapters by a team of international contributors, divided into five parts: Core Concepts; Liberatory Epistemologies and Axes of Oppression; Schools of Thought and Subfields within Epistemology; Socio-political, Ethical, and Psychological Dimensions of Knowing; Case Studies of Epistemic Injustice. As well as fundamental topics such as testimonial and hermeneutic injustice and epistemic trust the Handbook includes chapters on important issues such as social and virtue epistemology, objectivity and objectification, implicit bias, and gender and race. Also included are chapters on areas in applied ethics and philosophy, such as law, education, and healthcare. The Routledge Handbook of Epistemic Injustice is essential reading for students and researchers in ethics, epistemology, political philosophy, feminist theory, and philosophy of race. It will also be very useful for those in related fields, such as cultural studies, sociology, education, and law.

En contexte de handicap, la question de l’accès est constituée généralement de l’éventail des aménagements individuels et collectifs nécessaires afin de faciliter l’occupation d’espaces publics. A contrario, peu de choses sont dites à propos des aménagements possibles et potentiels requis afin de sécuriser l’espace privé des personnes identifiées comme ayant un handicap intellectuel. Ce sont pourtant ces lieux intimes, au sein desquels se développent et se déploient l’identité et l’expression affectives, qui sont susceptibles de contribuer à une reconnaissance plus soutenue de l’identité affective et de la citoyenneté sexuelle de ces personnes. Inspirée par les théories d’Erving Goffman et de Michel Foucault, une analyse phénoménologique interprétative (API) fut réalisée auprès des personnes ayant un handicap intellectuel et de leurs proches aidants afin d’explorer cette situation. Nos constats préliminaires suggèrent l’existence d’un processus de négociation complexe des acteurs, des lieux et des moments nécessaires afin de favoriser le développement de la vie affective et sexuelle. De ce fait, trois modes d’existence semblent cohabiter au sein d’une matrice complexe : la dépossession, l’habitation et l’occupation des espaces de socialisation et d’expression affective. Il est proposé d’aborder cette problématique en tant que dynamique géopolitique intégrant les processus d’exclusion des pratiques sexuelles des espaces privés, leur projection dans des espaces publics et, finalement, la juxtaposition de ces deux sphères, publique et privée dans des espaces mixtes. Nous discuterons enfin des implications de cette réflexion sur la « question de l’accès » et sur les politiques publiques visant à diminuer la discrimination systémique ciblant les personnes identifiées comme ayant un handicap intellectuel.

Interview of Robert McRuer on crip theory.

This article provides an overview on reproductive and sexual health of people with physical disabilities in developed and underdeveloped countries from 1995 to 2011. Based on the metasynthesis approach, the authors reviewed 15 qualitative studies. These studies were searched using Medline, CINAHL, CINAHL (health), ProQuest Central, Google Scholar, Cochrane, Embase, Informit Health, Sciences Direct, Pubmed, Pubmed Health, AAHD (abstracts), ProQuest Journal (sexuality and disability) and were also manually searched. All studies were judged on their qualities using the Critical Appraisal Skills Programme. Reproductive health, sexual attractiveness and experiences, reproductive and sexual health knowledge, and dealing with reproductive and sexual health issues were four main themes that emerged from these studies. This paper proposes a new model to explain the factors that impacted the reproductive and sexual life of people with physical disabilities: internal and external factors. Implications for health and social care are discussed in light of the findings.

In this ground-breaking new work, Dan Goodley makes the case for a novel, distinct, intellectual, and political project – dis/ability studies – an orientation that might encourage us to think again about the phenomena of disability and ability. Drawing on a range of interdisciplinary areas, including sociology, psychology, education, policy and cultural studies, this much needed text takes the most topical and important issues in critical disability theory, and pushes them into new theoretical territory. Goodley argues that we are entering a time of dis/ability studies, when both categories of disability and ability require expanding upon as a response to the global politics of neoliberal capitalism. Divided into two parts, the first section traces the dual processes of ableism and disablism, suggesting that one cannot exist without the other, and makes the case for a research-driven and intersectional analysis of dis/ability. The second section applies this new analytical framework to a range of critical topics, including: The biopolitics of dis/ability and debility Inclusive education Psychopathology Markets, communities and civil society. Dis/ability Studies provides much needed depth, texture and analysis in this emerging discipline. This accessible text will appeal to students and researchers of disability across a range of disciplines, as well as disability activists, policymakers, and practitioners working directly with disabled people.

Les femmes handicapées, leurs réalités et leurs combats sont encore largement absents du courant de pensée majoritaire (mainstream) en études féministes qui, malgré un virage récent vers les analyses intersectionnelles, demeurent peu au fait des modalités d'analyse du handicap et des oppressions fondées sur les (in)capacités. Cet article veut permettre à un lectorat francophone de se familiariser avec les principales bases conceptuelles utilisées pour théoriser le handicap et les (in)capacités développées dans le domaine des études critiques du handicap, et en particulier par les auteures féministes travaillant dans ce champ. Il vise également à contribuer aux connaissances féministes des enjeux de transformation sociopolitique qui sont centraux pour les femmes handicapées, tels que ceux-ci sont révélés par les luttes de l'organisation féministe Action des femmes handicapées (Montréal). En conclusion, l'auteure explique la raison pour laquelle le handicap doit être considéré comme un enjeu féministe

« This book explores the possibilities and limitations re-theorizing disability using historical materialism in the interdisciplinary contexts of social theory, cultural studies, social and education policy, feminist ethics, and theories of citizenship. »-- Résumé de l'éditeur.

Cet impressionnant recueil de prose, de poésie, de chansons et d'art visuel rédigé par des lesbiennes handicapées est la première de deux anthologies liées (la seconde est un recueil d'essais). Dans son introduction percutante (« Nous sommes ici. Nous sommes handicapés et queer. Habituez-vous-y »), la rédactrice en chef Shelley Tremain appelle à la reconnaissance et à la compréhension du monde selon les lesbiennes handicapées. La collection elle-même est colérique, compatissante, drôle et surtout émouvante. Sherree Clark présente des extraits de son recueil de poésie et d'art Living with Arthritis. Margot K. Lane célèbre la sexualité dans un merveilleux poème intitulé « Full day ». Le récit posthume de Kathleen Martindale sur le cancer du sein est un appel à l’action contre le personnel médical insensible, tout comme la chronique de Kathleen Rockhill sur sa guérison d’un accident de voiture dévastateur. Combinant colère et célébration, Pushing the Limits est une révélation.

Le champ du handicap a subi de profondes transformations au cours des quatre dernières décennies dans la majorité des sociétés postindustrielles. Ce phénomène, qui influence les approches théoriques et la recherche à l’intérieur des sciences sociales, a fait surgir un nouveau paradigme émancipatoire basé sur une remise en cause des rapports entre le chercheur et le « sujet d’étude ». Dans cet article, nous explorons le développement de ce paradigme en nous appuyant sur l’expérience britannique, et nous discutons de son apport à la compréhension du handicap et des politiques sociales en abordant la question du rôle et de la position des acteurs au sein de la pratique de recherche

As the interdisciplinary field of disability studies develops its own theoretical paradigms, it necessarily borrows from various sources. Such borrowing means that disability scholars have not had to reinvent the wheel but have been able to build on the conceptual foundations of identity-based theories that have grown out of other interdisciplinary fields, such as gender studies and critical race studies. But disability studies offers as much to its predecessors as it borrows from them. This essay explores the productive reciprocity between queer theory and disability studies, queer identity and crip identity, queer activism and crip activism.

From the moment intersexuality-the condition of having physical gender markers (genitals, gonads, or chromosomes) that are neither clearly female nor male-is suspected and diagnosed, social institutions are mobilized in order to maintain the two seemingly objective sexual categories. Infants' bodies are altered, and what was "ambiguous" is made "normal." Kessler's interviews with pediatric surgeons and endocrinologists reveal how the intersex condition is normalized for parents and she argues that the way in which intersexuality is managed by the medical and psychological professions displays our culture's beliefs about gender and genitals. Parents of intersexed children are rarely heard from, but in this book they provide another perspective on reasons for genital surgeries and the quality of medical and psychological management. Although physicians educate parents about how to think about their children's condition, Kessler learned from parents of intersexed children that some parents are able to accept atypical genitals. Based on analysis of the medical literature and interview with adults who had received treatment as interesexed children, Kessler proposes new approaches for physicians to use in talking with parents and children. She also evaluates the appearance of a politicized vanguard, many of who are promoting an intersexual identity, who seek to alter the way physicians respond to intersexuality. Kessler explores the possibilities and implications of suspending a commitment to two "natural" genders and addresses gender destabilization issues arising from intersexuality. She thus compels readers to re-think the meaning of gender, genitals, and sexuality.