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Nos existences handies” est un recueil de textes de Zig Blanquer. Ces essais puissamment politiques et enthousiasmants abordent le validisme, l’autonomie des handis, la sexualité, critiquent la notion de courage et de charité… Ils ont été écrits sur une vingtaine d’années, parus dans des revues et médias en ligne et hors ligne.

This research examines the discourses that shape disabled women’s sexual subjectivity. I wanted to see how disabled women’s understanding of themselves as sexual is socially influenced. I held a focus group and individually interviewed five self-identified physically disabled women about their sexual lives. They shared detailed stories of personal experiences and societal influences. The main social influences that were present in the women’s stories were ableism, sexism, and resistance; the focus of this article is resistance. Resistance discourses challenge mainstream notions of disability and sexuality and combat the oppression that ableism and sexism can create. It is important work to highlight these resistance narratives; they are often overlooked in society. Diverse social understandings of disability and sexuality are needed, and it is important that they come from disabled people. This research seeks to make space for disabled perspectives in the interest of sexual inclusivity and sexual citizenship for disabled women.

In this paper, we propose a conceptual framework for understanding the impact of the policy responses to COVID-19 on disabled people. These responses have overwhelmingly focused on individual vulnerability, which has been used as a justification for removing or restricting rights. This suggests the need to shift the attention towards the social determinants of disabled people's vulnerability. We do this by bringing literature on social vulnerability in disaster risk management or 'disaster studies' in contact with key concepts in disability studies such as the social model of disability, independent living, intersectionality, and biopower. Empirically, we draw on the findings of the global COVID-19 Disability Rights Monitor (www.covid-drm.org), as well as on reports from academic journals, civil society publications, and internet blogs. We put the proposed conceptual framework to work by developing a critical analysis of COVID-19 policies in three interrelated areas-institutional treatment and confinement of disabled people, intersectional harms, and access to health care. Our conclusion links this analysis with strategies to address disabled people's social vulnerability in post-pandemic reconstruction efforts. We make a case for policies that address the social, economic, and environmental conditions that disproportionately expose disabled people to natural disasters and hazards.

This handbook provides a much-needed holistic overview of disability and sexuality research andscholarship. With authors from a wide range of disciplines and representing a diversity of nationalities, it provides a multi-perspectival view that fully captures the diversity of issues and outlooks. Organised into six parts, the contributors explore long-standing issues such as the psychological, interpersonal, social, political and cultural barriers to sexual access that idsabled people face and their struggle for sexual rights and participation. The volume also engages issues that have been on the periphery of the discourse, such as sexual accomodations and support aimed at facilitating disabled people's sexual well-being; the socio-sexual tensions confronting disabled people with intersecting stigmatised identities such as LGBTBI or asexual; and the sexual concerns of disabled people in the Global South. It interrogates disability and sexuality from diverse perspectives, from more traditional psychological and sociological models, to various subversive and post-theoretical perspectives and queer theory. This handbook examines the cutting-edge, and sometimes ethically contentious, concerns that have been repressed in the field. With current, international and comprehensive content, this book is essential reading for students, academics and researchers in the areas of disability, gender and sexuality, as well as applied disciplines such as healthcare pratictionners, counsellors, psychology trainees and social workers.

This article highlights the importance of recognizing both the ontology of impairment as it relates to the creation of the disabled identity as well as why articulations of the disabled identity being ‘crip’ obfuscate potential politics. Examining how the disabled identity has been cast as a coherent social and political category, rather than the messy and complicated identity it truly is, I argue the adoption of a post-structuralist orientation by activists and advocates is bad for disability politics. Providing two examples, the first focusing on a publicized rape case of a person with an intellectual disability and the second on the importance of disability rights claims based on visibility of impairment, I show how articulations like those made in crip theory can have serious, negative implications for the lived experience of people with disabilities. I conclude with a call for disability studies scholars to engage disability politics in their work.

This article analyses the phenomenon of epistemic injustice within contemporary healthcare. We begin by detailing the persistent complaints patients make about their testimonial frustration and hermeneutical marginalization, and the negative impact this has on their care. We offer an epistemic analysis of this problem using Miranda Fricker’s account of epistemic injustice. We detail two types of epistemic injustice, testimonial and hermeneutical, and identify the negative stereotypes and structural features of modern healthcare practices that generate them. We claim that these stereotypes and structural features render ill persons especially vulnerable to these two types of epistemic injustice. We end by proposing five avenues for further work on epistemic injustice in healthcare.

En contexte de handicap, la question de l’accès est constituée généralement de l’éventail des aménagements individuels et collectifs nécessaires afin de faciliter l’occupation d’espaces publics. A contrario, peu de choses sont dites à propos des aménagements possibles et potentiels requis afin de sécuriser l’espace privé des personnes identifiées comme ayant un handicap intellectuel. Ce sont pourtant ces lieux intimes, au sein desquels se développent et se déploient l’identité et l’expression affectives, qui sont susceptibles de contribuer à une reconnaissance plus soutenue de l’identité affective et de la citoyenneté sexuelle de ces personnes. Inspirée par les théories d’Erving Goffman et de Michel Foucault, une analyse phénoménologique interprétative (API) fut réalisée auprès des personnes ayant un handicap intellectuel et de leurs proches aidants afin d’explorer cette situation. Nos constats préliminaires suggèrent l’existence d’un processus de négociation complexe des acteurs, des lieux et des moments nécessaires afin de favoriser le développement de la vie affective et sexuelle. De ce fait, trois modes d’existence semblent cohabiter au sein d’une matrice complexe : la dépossession, l’habitation et l’occupation des espaces de socialisation et d’expression affective. Il est proposé d’aborder cette problématique en tant que dynamique géopolitique intégrant les processus d’exclusion des pratiques sexuelles des espaces privés, leur projection dans des espaces publics et, finalement, la juxtaposition de ces deux sphères, publique et privée dans des espaces mixtes. Nous discuterons enfin des implications de cette réflexion sur la « question de l’accès » et sur les politiques publiques visant à diminuer la discrimination systémique ciblant les personnes identifiées comme ayant un handicap intellectuel.

In this ground-breaking new work, Dan Goodley makes the case for a novel, distinct, intellectual, and political project – dis/ability studies – an orientation that might encourage us to think again about the phenomena of disability and ability. Drawing on a range of interdisciplinary areas, including sociology, psychology, education, policy and cultural studies, this much needed text takes the most topical and important issues in critical disability theory, and pushes them into new theoretical territory. Goodley argues that we are entering a time of dis/ability studies, when both categories of disability and ability require expanding upon as a response to the global politics of neoliberal capitalism. Divided into two parts, the first section traces the dual processes of ableism and disablism, suggesting that one cannot exist without the other, and makes the case for a research-driven and intersectional analysis of dis/ability. The second section applies this new analytical framework to a range of critical topics, including: The biopolitics of dis/ability and debility Inclusive education Psychopathology Markets, communities and civil society. Dis/ability Studies provides much needed depth, texture and analysis in this emerging discipline. This accessible text will appeal to students and researchers of disability across a range of disciplines, as well as disability activists, policymakers, and practitioners working directly with disabled people.

Review of Feminist, Queer, Crip by Alison Kafer.

Parler de handicap, investir le champ du handicap conduit à questionner les manières de porter le geste, d'agir, de se mouvoir, que chacun d'entre nous a coutume de tenir pour neutres et ordinaires. Car comment construit-on sa virilité quand le corps ne correspond pas au standard, quand la force ou le muscle fait défaut ? Comment parle-t-on de soi, lorsqu'on est en situation de handicap ? Comment appréhende-t-on son expérience, lorsque certains gestes ne peuvent se faire en autonomie, et nécessitent une coréalisation, l'aide, la coopération de l'autre ? A travers des entretiens non directifs d'hommes "handis", comme ils se définissent eux-mêmes, complétés par de l'observation participante, Pierre Dufour, lui-même en fauteuil, dénoue le discours qui sous-tend la situation de handicap, le regard que l'on porte sur soi, sur sa virilité, sur sa capacité à s'affranchir des standards et d'un vocabulaire issus d'un agencement du monde "valido-viril" qui ne sont d'aucune utilité pour décrire son quotidien : parle-t-on d'un corps qui rampe sur la plage pour aller se baigner ? Qui fait la "brouette" pour monter un escalier ? Quelle place ambiguë le sport "handi" tient-il vraiment dans ce rapport au corps ? On questionne rarement les normes et les valeurs issues des modalités d'être valides. Or comment soutenir que disposer d'un corps muni de bras et de jambes, mobiles, allant par deux, n'induirait aucune norme, n'orienterait en rien les descriptions ? Croisant les thèmes du handicap et du genre, l'auteur interroge à la fois les pratiques d'hommes se déplaçant en fauteuil roulant et le stock social des discours possibles sur la diversité corporelle. Par son approche originale, cet ouvrage apporte un éclairage peu courant, et notamment sur le thème de l'assistance sexuelle.

Les femmes handicapées, leurs réalités et leurs combats sont encore largement absents du courant de pensée majoritaire (mainstream) en études féministes qui, malgré un virage récent vers les analyses intersectionnelles, demeurent peu au fait des modalités d'analyse du handicap et des oppressions fondées sur les (in)capacités. Cet article veut permettre à un lectorat francophone de se familiariser avec les principales bases conceptuelles utilisées pour théoriser le handicap et les (in)capacités développées dans le domaine des études critiques du handicap, et en particulier par les auteures féministes travaillant dans ce champ. Il vise également à contribuer aux connaissances féministes des enjeux de transformation sociopolitique qui sont centraux pour les femmes handicapées, tels que ceux-ci sont révélés par les luttes de l'organisation féministe Action des femmes handicapées (Montréal). En conclusion, l'auteure explique la raison pour laquelle le handicap doit être considéré comme un enjeu féministe

« This book explores the possibilities and limitations re-theorizing disability using historical materialism in the interdisciplinary contexts of social theory, cultural studies, social and education policy, feminist ethics, and theories of citizenship. »-- Résumé de l'éditeur.

Cet impressionnant recueil de prose, de poésie, de chansons et d'art visuel rédigé par des lesbiennes handicapées est la première de deux anthologies liées (la seconde est un recueil d'essais). Dans son introduction percutante (« Nous sommes ici. Nous sommes handicapés et queer. Habituez-vous-y »), la rédactrice en chef Shelley Tremain appelle à la reconnaissance et à la compréhension du monde selon les lesbiennes handicapées. La collection elle-même est colérique, compatissante, drôle et surtout émouvante. Sherree Clark présente des extraits de son recueil de poésie et d'art Living with Arthritis. Margot K. Lane célèbre la sexualité dans un merveilleux poème intitulé « Full day ». Le récit posthume de Kathleen Martindale sur le cancer du sein est un appel à l’action contre le personnel médical insensible, tout comme la chronique de Kathleen Rockhill sur sa guérison d’un accident de voiture dévastateur. Combinant colère et célébration, Pushing the Limits est une révélation.

Consideration of sexual pleasure in the lives of people with disabilities plays little part in lay consciousness, and practically none in social policy. This article investigates such repression by engaging with a cultural imaginary that fears nonnormative sexuality as being a potential point of societal breakdown. Recent work in disability studies gives a very different understanding of the sexuate body that opens up the parameters of sexuality for everyone. This work challenges current social policy’s supposedly rational utilitarian basis and the principle of equality that together ground a sociopolitical economy of disability predicated on rehabilitation or compensation. Nonetheless, the call for sexual citizenship for people with disabi lities is fraught with difficulties, not least regarding the potential extension of govern mentality. An effective approach not only will take into account the sociopolitical aspects of this issue but also will respond to both the full embodiment of disability and its significance in mainstream culture.

Le champ du handicap a subi de profondes transformations au cours des quatre dernières décennies dans la majorité des sociétés postindustrielles. Ce phénomène, qui influence les approches théoriques et la recherche à l’intérieur des sciences sociales, a fait surgir un nouveau paradigme émancipatoire basé sur une remise en cause des rapports entre le chercheur et le « sujet d’étude ». Dans cet article, nous explorons le développement de ce paradigme en nous appuyant sur l’expérience britannique, et nous discutons de son apport à la compréhension du handicap et des politiques sociales en abordant la question du rôle et de la position des acteurs au sein de la pratique de recherche

As the interdisciplinary field of disability studies develops its own theoretical paradigms, it necessarily borrows from various sources. Such borrowing means that disability scholars have not had to reinvent the wheel but have been able to build on the conceptual foundations of identity-based theories that have grown out of other interdisciplinary fields, such as gender studies and critical race studies. But disability studies offers as much to its predecessors as it borrows from them. This essay explores the productive reciprocity between queer theory and disability studies, queer identity and crip identity, queer activism and crip activism.

From the moment intersexuality-the condition of having physical gender markers (genitals, gonads, or chromosomes) that are neither clearly female nor male-is suspected and diagnosed, social institutions are mobilized in order to maintain the two seemingly objective sexual categories. Infants' bodies are altered, and what was "ambiguous" is made "normal." Kessler's interviews with pediatric surgeons and endocrinologists reveal how the intersex condition is normalized for parents and she argues that the way in which intersexuality is managed by the medical and psychological professions displays our culture's beliefs about gender and genitals. Parents of intersexed children are rarely heard from, but in this book they provide another perspective on reasons for genital surgeries and the quality of medical and psychological management. Although physicians educate parents about how to think about their children's condition, Kessler learned from parents of intersexed children that some parents are able to accept atypical genitals. Based on analysis of the medical literature and interview with adults who had received treatment as interesexed children, Kessler proposes new approaches for physicians to use in talking with parents and children. She also evaluates the appearance of a politicized vanguard, many of who are promoting an intersexual identity, who seek to alter the way physicians respond to intersexuality. Kessler explores the possibilities and implications of suspending a commitment to two "natural" genders and addresses gender destabilization issues arising from intersexuality. She thus compels readers to re-think the meaning of gender, genitals, and sexuality.

''Susan Wendell has lived with Chronic Fatigue Syndrome (Myalgic Encephalomyelitis) since 1985. In The Rejected Body, she connects her own experience of illness to feminist theory and the literature of disability. The Rejected Body argues that feminist theorizing has been skewed toward non-disabled experience, and that the knowledge of people with disabilities must be integrated into feminist ethics, discussions of bodily life, and the criticism of the cognitive and social authority of medicine.''