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Nos existences handies” est un recueil de textes de Zig Blanquer. Ces essais puissamment politiques et enthousiasmants abordent le validisme, l’autonomie des handis, la sexualité, critiquent la notion de courage et de charité… Ils ont été écrits sur une vingtaine d’années, parus dans des revues et médias en ligne et hors ligne.
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This research examines the discourses that shape disabled women’s sexual subjectivity. I wanted to see how disabled women’s understanding of themselves as sexual is socially influenced. I held a focus group and individually interviewed five self-identified physically disabled women about their sexual lives. They shared detailed stories of personal experiences and societal influences. The main social influences that were present in the women’s stories were ableism, sexism, and resistance; the focus of this article is resistance. Resistance discourses challenge mainstream notions of disability and sexuality and combat the oppression that ableism and sexism can create. It is important work to highlight these resistance narratives; they are often overlooked in society. Diverse social understandings of disability and sexuality are needed, and it is important that they come from disabled people. This research seeks to make space for disabled perspectives in the interest of sexual inclusivity and sexual citizenship for disabled women.
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In this paper, we propose a conceptual framework for understanding the impact of the policy responses to COVID-19 on disabled people. These responses have overwhelmingly focused on individual vulnerability, which has been used as a justification for removing or restricting rights. This suggests the need to shift the attention towards the social determinants of disabled people's vulnerability. We do this by bringing literature on social vulnerability in disaster risk management or 'disaster studies' in contact with key concepts in disability studies such as the social model of disability, independent living, intersectionality, and biopower. Empirically, we draw on the findings of the global COVID-19 Disability Rights Monitor (www.covid-drm.org), as well as on reports from academic journals, civil society publications, and internet blogs. We put the proposed conceptual framework to work by developing a critical analysis of COVID-19 policies in three interrelated areas-institutional treatment and confinement of disabled people, intersectional harms, and access to health care. Our conclusion links this analysis with strategies to address disabled people's social vulnerability in post-pandemic reconstruction efforts. We make a case for policies that address the social, economic, and environmental conditions that disproportionately expose disabled people to natural disasters and hazards.
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This handbook provides a much-needed holistic overview of disability and sexuality research andscholarship. With authors from a wide range of disciplines and representing a diversity of nationalities, it provides a multi-perspectival view that fully captures the diversity of issues and outlooks. Organised into six parts, the contributors explore long-standing issues such as the psychological, interpersonal, social, political and cultural barriers to sexual access that idsabled people face and their struggle for sexual rights and participation. The volume also engages issues that have been on the periphery of the discourse, such as sexual accomodations and support aimed at facilitating disabled people's sexual well-being; the socio-sexual tensions confronting disabled people with intersecting stigmatised identities such as LGBTBI or asexual; and the sexual concerns of disabled people in the Global South. It interrogates disability and sexuality from diverse perspectives, from more traditional psychological and sociological models, to various subversive and post-theoretical perspectives and queer theory. This handbook examines the cutting-edge, and sometimes ethically contentious, concerns that have been repressed in the field. With current, international and comprehensive content, this book is essential reading for students, academics and researchers in the areas of disability, gender and sexuality, as well as applied disciplines such as healthcare pratictionners, counsellors, psychology trainees and social workers.
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The literature on epistemic injustice currently displays a logocentric or propositional bias that excludes people with intellectual disabilities from the scope of epistemic agency and the demands of epistemic justice. This paper develops an account of epistemic agency and injustice that is inclusive of both people with and people without intellectual disabilities. I begin by specifying the hitherto undertheorized notion of epistemic agency. I develop a broader, pluralist account of epistemic agency, which relies on a conception of knowledge that accounts not only for propositional knowing, but also for other types of knowing that have been largely neglected in debates on epistemic injustice and agency. Based on this pluralist account of epistemic agency, I then show that people with intellectual disabilities qualify as epistemic agents and therefore as subjects of epistemic justice. Finally, I argue that this pluralist account of epistemic agency pushes us to revisit the current conception of epistemic injustice and to expand its taxonomy in two important ways.
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"This is one of the first books to offer a comprehensive philosophical treatment of microaggressions. Its aims are to provide an intersectional analysis of microaggressions that cuts across multiple groups and dimensions of oppression and marginalization, and to engage a variety of perspectives that have been sidelined within the discipline of philosophy. The volume gathers a diverse group of contributors: philosophers of color, philosophers with disabilities, philosophers of various nationalities and ethnicities, and philosophers of several genders and gender identities. Their unique frames of analysis articulate both how the concept of microaggressions can be used to clarify and sharpen our understanding of subtler aspects of oppression and how analysis, expansion, and reconceiving the notion of a microaggression can deepen and extend its explanatory power. The essays in the volume are divided into four thematic parts. The essays in Part I seek to defend microaggressions from common critiques and to explain their impact beyond the context of college students. In Part II the contributors set forth a framework for legitimizing microaggressions research that takes into account issues of measurement, scale, and replication. Part III explores the harms of microaggressions. The chapters show how small slights can accumulate to produce significant harm at the macro level, demonstrate how microaggressions contribute to epistemic harm, and establish novel understandings of racial and accent-triggered microaggressions. Finally, Part IV addresses issues of disability and ableism within the context of microaggressions. It includes commentary on transgender athletes, disciplinary techniques for bodily nonconformity, ableist exceptionalism, and deafness. Microaggressions and Philosophy features cutting-edge research on an important topic that will appeal to a wide range of students and scholars across disciplines. It includes perspectives from philosophy of psychology, empirically informed philosophy, feminist philosophy, critical race theory, disability theory, philosophy of language, philosophy of science, and social and political philosophy"-- Provided by publisher.
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A Black feminist disability framework allows for methodological considerations of the intersectional nature of oppression. Our work in this article is twofold: to acknowledge the need to consider disability in Black Studies and race in Disability Studies, and to forward an intersectional framework that considers race, gender, and disability to address the gaps in both Black Studies and Disability Studies. By employing a Black feminist disability framework, scholars of African American and Black Studies, Women’s, Gender, and Sexuality Studies, and Disability Studies have a flexible and useful methodology through which to consider the historical, social, cultural, political, and economic reverberations of disability.
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This article analyses the phenomenon of epistemic injustice within contemporary healthcare. We begin by detailing the persistent complaints patients make about their testimonial frustration and hermeneutical marginalization, and the negative impact this has on their care. We offer an epistemic analysis of this problem using Miranda Fricker’s account of epistemic injustice. We detail two types of epistemic injustice, testimonial and hermeneutical, and identify the negative stereotypes and structural features of modern healthcare practices that generate them. We claim that these stereotypes and structural features render ill persons especially vulnerable to these two types of epistemic injustice. We end by proposing five avenues for further work on epistemic injustice in healthcare.
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In the era of information and communication, issues of misinformation and miscommunication are more pressing than ever. Epistemic injustice--one of the most important and ground-breaking subjects to have emerged in philosophy in recent years--refers to those forms of unfair treatment that relate to issues of knowledge, understanding, and participation in communicative practices. The Routledge Handbook of Epistemic Injustice is an outstanding reference source to the key topics, problems, and debates in this exciting subject. The first collection of its kind, it comprises over thirty chapters by a team of international contributors, divided into five parts: Core Concepts; Liberatory Epistemologies and Axes of Oppression; Schools of Thought and Subfields within Epistemology; Socio-political, Ethical, and Psychological Dimensions of Knowing; Case Studies of Epistemic Injustice. As well as fundamental topics such as testimonial and hermeneutic injustice and epistemic trust the Handbook includes chapters on important issues such as social and virtue epistemology, objectivity and objectification, implicit bias, and gender and race. Also included are chapters on areas in applied ethics and philosophy, such as law, education, and healthcare. The Routledge Handbook of Epistemic Injustice is essential reading for students and researchers in ethics, epistemology, political philosophy, feminist theory, and philosophy of race. It will also be very useful for those in related fields, such as cultural studies, sociology, education, and law.
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This article provides an overview on reproductive and sexual health of people with physical disabilities in developed and underdeveloped countries from 1995 to 2011. Based on the metasynthesis approach, the authors reviewed 15 qualitative studies. These studies were searched using Medline, CINAHL, CINAHL (health), ProQuest Central, Google Scholar, Cochrane, Embase, Informit Health, Sciences Direct, Pubmed, Pubmed Health, AAHD (abstracts), ProQuest Journal (sexuality and disability) and were also manually searched. All studies were judged on their qualities using the Critical Appraisal Skills Programme. Reproductive health, sexual attractiveness and experiences, reproductive and sexual health knowledge, and dealing with reproductive and sexual health issues were four main themes that emerged from these studies. This paper proposes a new model to explain the factors that impacted the reproductive and sexual life of people with physical disabilities: internal and external factors. Implications for health and social care are discussed in light of the findings.
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In this ground-breaking new work, Dan Goodley makes the case for a novel, distinct, intellectual, and political project – dis/ability studies – an orientation that might encourage us to think again about the phenomena of disability and ability. Drawing on a range of interdisciplinary areas, including sociology, psychology, education, policy and cultural studies, this much needed text takes the most topical and important issues in critical disability theory, and pushes them into new theoretical territory. Goodley argues that we are entering a time of dis/ability studies, when both categories of disability and ability require expanding upon as a response to the global politics of neoliberal capitalism. Divided into two parts, the first section traces the dual processes of ableism and disablism, suggesting that one cannot exist without the other, and makes the case for a research-driven and intersectional analysis of dis/ability. The second section applies this new analytical framework to a range of critical topics, including: The biopolitics of dis/ability and debility Inclusive education Psychopathology Markets, communities and civil society. Dis/ability Studies provides much needed depth, texture and analysis in this emerging discipline. This accessible text will appeal to students and researchers of disability across a range of disciplines, as well as disability activists, policymakers, and practitioners working directly with disabled people.
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Parler de handicap, investir le champ du handicap conduit à questionner les manières de porter le geste, d'agir, de se mouvoir, que chacun d'entre nous a coutume de tenir pour neutres et ordinaires. Car comment construit-on sa virilité quand le corps ne correspond pas au standard, quand la force ou le muscle fait défaut ? Comment parle-t-on de soi, lorsqu'on est en situation de handicap ? Comment appréhende-t-on son expérience, lorsque certains gestes ne peuvent se faire en autonomie, et nécessitent une coréalisation, l'aide, la coopération de l'autre ? A travers des entretiens non directifs d'hommes "handis", comme ils se définissent eux-mêmes, complétés par de l'observation participante, Pierre Dufour, lui-même en fauteuil, dénoue le discours qui sous-tend la situation de handicap, le regard que l'on porte sur soi, sur sa virilité, sur sa capacité à s'affranchir des standards et d'un vocabulaire issus d'un agencement du monde "valido-viril" qui ne sont d'aucune utilité pour décrire son quotidien : parle-t-on d'un corps qui rampe sur la plage pour aller se baigner ? Qui fait la "brouette" pour monter un escalier ? Quelle place ambiguë le sport "handi" tient-il vraiment dans ce rapport au corps ? On questionne rarement les normes et les valeurs issues des modalités d'être valides. Or comment soutenir que disposer d'un corps muni de bras et de jambes, mobiles, allant par deux, n'induirait aucune norme, n'orienterait en rien les descriptions ? Croisant les thèmes du handicap et du genre, l'auteur interroge à la fois les pratiques d'hommes se déplaçant en fauteuil roulant et le stock social des discours possibles sur la diversité corporelle. Par son approche originale, cet ouvrage apporte un éclairage peu courant, et notamment sur le thème de l'assistance sexuelle.
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La reconnaissance du droit des personnes ayant des incapacités intellectuelles à une éducation à la sexualité a généré la conception et l’implantation de programmes éducatifs. À quelles valeurs et croyances les professionnels se réfèrent-ils pour organiser l’éducation à la sexualité? Une analyse critique des approches dominantes actuelles est proposée pour contribuer à leur progrès et à leur transformation. Pour dépasser les limites des approches paternalistes et objectivistes, il est suggéré d’adopter un nouveau paradigme fondé sur des perspectives participatives et subjectivistes. Le renouvellement de l’éducation à la sexualité pourrait procéder par énovation en enrichissant et en élargissant les pratiques existantes.
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Les femmes handicapées, leurs réalités et leurs combats sont encore largement absents du courant de pensée majoritaire (mainstream) en études féministes qui, malgré un virage récent vers les analyses intersectionnelles, demeurent peu au fait des modalités d'analyse du handicap et des oppressions fondées sur les (in)capacités. Cet article veut permettre à un lectorat francophone de se familiariser avec les principales bases conceptuelles utilisées pour théoriser le handicap et les (in)capacités développées dans le domaine des études critiques du handicap, et en particulier par les auteures féministes travaillant dans ce champ. Il vise également à contribuer aux connaissances féministes des enjeux de transformation sociopolitique qui sont centraux pour les femmes handicapées, tels que ceux-ci sont révélés par les luttes de l'organisation féministe Action des femmes handicapées (Montréal). En conclusion, l'auteure explique la raison pour laquelle le handicap doit être considéré comme un enjeu féministe
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Ce mémoire s’appuie sur une recherche ethnographique réalisée principalement au sein de la communauté sourde de Montréal et tente de déceler les représentations de l’identité sourde au sein de performances artistiques de la scène montréalaise. Le but de cette recherche est d’inscrire la culture sourde dans les réflexions sociales et scientifiques portant sur l’expression identitaire de minorités culturelles par les arts. Afin de démontrer les liens à la fois théoriques et pratiques entre l’identité sourde et celles de minorités socio- politiques, telles que les Noirs, les gays, les femmes ou les Queers, cette étude s’appuie sur les concepts de performativité (Judith Butler), de performance (Clifford Geertz et Victor Turner) et de représentations (Stuart Hall et Serge Moscovici). Y seront également démontrées les relations entre ces notions, le vécu des sujets, leur agency et leur expression artistique.
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This article elaborates an intimate justice framework to help guide research on sexual satisfaction. Using a critical historiography approach, I examine the etiology and development of the psychological construct of “satisfaction” over the last century and argue that social and political antecedents to satisfaction ratings are an essential and under-theorized aspect of research in this field. By examining what are considered to be the most influential definitions in life satisfaction research, I identify conceptual gaps, oversights, and disagreements that characterize this body of work, and specifically its theoretical treatment of inequity. Moving to the intimate domain, I argue that the field of sexual satisfaction must include theories and methods that systematically consider the role of social and sexual stigmas as antecedents to sexual satisfaction ratings. In the conclusion, building from existing social justice theories, I propose an intimate justice framework as a means to guide research that can highlight issues of entitlement and deservingness in sexual satisfaction research. This is particularly important as sexual satisfaction is increasingly used as an indicator of individual and relational well-being; however, this construct is presently limited and inadequately measured for women and men who experience limited sexual rights in the socio-political domain because of their gender and/or sexual minority status.
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Consideration of sexual pleasure in the lives of people with disabilities plays little part in lay consciousness, and practically none in social policy. This article investigates such repression by engaging with a cultural imaginary that fears nonnormative sexuality as being a potential point of societal breakdown. Recent work in disability studies gives a very different understanding of the sexuate body that opens up the parameters of sexuality for everyone. This work challenges current social policy’s supposedly rational utilitarian basis and the principle of equality that together ground a sociopolitical economy of disability predicated on rehabilitation or compensation. Nonetheless, the call for sexual citizenship for people with disabi lities is fraught with difficulties, not least regarding the potential extension of govern mentality. An effective approach not only will take into account the sociopolitical aspects of this issue but also will respond to both the full embodiment of disability and its significance in mainstream culture.
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Le champ du handicap a subi de profondes transformations au cours des quatre dernières décennies dans la majorité des sociétés postindustrielles. Ce phénomène, qui influence les approches théoriques et la recherche à l’intérieur des sciences sociales, a fait surgir un nouveau paradigme émancipatoire basé sur une remise en cause des rapports entre le chercheur et le « sujet d’étude ». Dans cet article, nous explorons le développement de ce paradigme en nous appuyant sur l’expérience britannique, et nous discutons de son apport à la compréhension du handicap et des politiques sociales en abordant la question du rôle et de la position des acteurs au sein de la pratique de recherche
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From the moment intersexuality-the condition of having physical gender markers (genitals, gonads, or chromosomes) that are neither clearly female nor male-is suspected and diagnosed, social institutions are mobilized in order to maintain the two seemingly objective sexual categories. Infants' bodies are altered, and what was "ambiguous" is made "normal." Kessler's interviews with pediatric surgeons and endocrinologists reveal how the intersex condition is normalized for parents and she argues that the way in which intersexuality is managed by the medical and psychological professions displays our culture's beliefs about gender and genitals. Parents of intersexed children are rarely heard from, but in this book they provide another perspective on reasons for genital surgeries and the quality of medical and psychological management. Although physicians educate parents about how to think about their children's condition, Kessler learned from parents of intersexed children that some parents are able to accept atypical genitals. Based on analysis of the medical literature and interview with adults who had received treatment as interesexed children, Kessler proposes new approaches for physicians to use in talking with parents and children. She also evaluates the appearance of a politicized vanguard, many of who are promoting an intersexual identity, who seek to alter the way physicians respond to intersexuality. Kessler explores the possibilities and implications of suspending a commitment to two "natural" genders and addresses gender destabilization issues arising from intersexuality. She thus compels readers to re-think the meaning of gender, genitals, and sexuality.
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